Jared is a 12 year old boy who has Langerhans Cell Histiocytosis (LCH), a cancer-like condition. LCH involves a proliferation of Langerhans or abnormal cells deriving from the bone marrow, which can migrate from skin to lymph nodes and can result in bone lesions as well as multisystem disease. He has a specific neurodegenerative type which affects his central nervous system leaving which has resulted in some physical limitations, cognitive issues etc. His speech at times is slurred. He is currently undergoing chemo for LCH. He has been getting chemo for a little over two years. His balance is off, so he needs somebody close by because he could fall at any time. He has had 133 chemo treatments so far and has never cried or had a negative attitude about any of it.

At the moment, Jared goes to school for half days where he must use a wheelchair. Jared is limited to what he can do because of mobility issues. His favorite things are Transformers, Legos too, and the Three Stooges. Jared’s favorite colors are green and red. He holds a lot of emotions inside. When his mother told him about Designing Dreams, he said he was so excited he was about to burst!

Designing Dreams redesigned Jared's bedroom in July of 2014.

by Kelly O'Donnell

Executive Director

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